Trust
Another thing we saw very clearly during this round table, was the fact that patients have lost their trust in pharma & healthcare. Without trust, the concept of Customer-Centricity loses its value.
It is hard to put the finger on the exact cause of this mistrust. One thing is for sure, COVID has only made this mistrust more visible but it was already there, even before COVID started. Pharma’s quick response to the virus has many people questioning pharma’s general interest in helping the public. Suddenly, things move very quickly because of political and economic interest. With many rare diseases, this is not at all the case. These people feel left out & they feel monetized.
Patients also feel that apart from COVID, there are a lot of pharma companies who act like they are customer-centric, but in reality, there are not. Patients think it is difficult to distinguish genuine actions, in which the goals truly are becoming more patient-centric, from actions where the sole scope is ROI. When the latter is the case, surveys of pharma can even be perceived as a tool to sell more drugs, instead of an attempt of trying to understand the patient better. There is also a lot of misleading information out there, which does not help.
“If everyone is in the race to find a COVID19 trial, hasn’t anyone embarked upon exploring a treatment for my condition”
Patient Advocate